I f finally had the first part of my DBS. I didn’t know that I would be in so much pain and so much nausea. It is now Thursday and I had it last Friday. Tomorrow I get the second part of my DBS. which is to put the pack in my chest so it can be connected, This is scary as well as the first one. I just couldn’t take it anymore. I was waking up with pain in my legs, rigidity in my legs and back, dystonia, dyskinesia from too much Rytary(slow release carbidopa levodopa), and just not feeling well. I just wanted a better quality of life. I’m already starting to feel a lot better. I was afraid that shaving my head as vain as I am would be terrible, but it really isn’t. I got precious wigs with caps in them, baseball caps and hair growing from them. It is very cute and doesn’t look that bad. I hope that the DBS proves to be giving me a better quality of life. I’ve talked to a couple people and they told me that is a new lease on life. And I already feel it I think that more people should do DBS, It can’t hurt you but it can’t help you. I hope I have a new lease on life. My toes don’t hurt anymore. I’m happier.
That is a great quality. I feel like a new person. I hope I can continue to re-start my athletic activities. There are so many qualified neurosurgeons that will do DBS. I love my surgeon and he will tell you if you are qualified to have this procedure. The first day I woke up was horrendous! My head was coming off my body and my stomach was in total nausea. They gave me Dilaudid and Zofran and nothing seem to help. I was a mess but time goes on. Each day I feel better and better. It is now Thursday evening and I go for my second procedure tomorrow. I decided not to care what other people thought about my hair or no hair and just shave the whole thing off. I have such cute wigs. They are baseball caps with hair coming out and then I have a dressy one that I wear to things that I don’t even go to. I have a feeling that this is going to be the best thing that I could’ve done to manage my symptoms
My symptoms were rigidity, bradykinesia, dyskinesia, dystonia, and generalized anxiety. It’s strange, but the generalized anxiety has gone away. You never know how many friends you have but when I posted on Facebook I had over 100 friends that were concerned about me. The support and love. were incredible. I couldn’t believe that. Many people cared about me and you will probably think the same. but I love to give and I love other people to feel good. Love is everything love is everything.
I loved going to sleep with Anastesia so you won’t be have a problem with that. Now, waking up is another thing. That was the only thing I was afraid of. Waking up! But I did. I’m here to tell the tale. I’ve only heard good things about DBS I hope when I get programmed, it will help with my symptoms. If anybody wants to call me, they can just get in touch with me through my blog. I will get back to you. Just don’t give up a missed opportunity. DBS is something that we have at our fingertips. Let’s use it
Living with MS and Parkinson's Disease 