What it feel like to have MS and Parkinson’s. 

A friend of mine said that having Parkinson’s is a struggle everyday. He said that for him it was like constantly fighting your way out of a paper bag.  I don’t quite understand the analogy, but I’ll put it this way.  Everyday when I wake up, I wonder if my symptoms will show up and terrorize my mind and body or will I have a somewhat easier day what do I mean by that?

1.  Will I be able to walk without a struggle?  Will I have numb feet, toes that curl under so much that it’s painful to walk, heavy legs that they fell like they are in cement blocks and/or slowness when I walk?
2. Will I lose my balance when I walk up or down steps in front of others?  Or will I walk so unsteady that I look like I’ve been drinking?  I’ve walked into walls; I’ve walked into people, even my best friend!                                                     3. Will my pills where off before I get home and prevent me from getting to my apartment without help from a friend?     4.  Will my anxiety and depression be so bad that I can’t stop crying and just want to stay in bed?friendsbecauseyou’re..havechronicdon’tillness.It’sdegradinghumiliating. pain when.toyourselfablebecausefeelingunderstandfriends and family think it’s easier for them not to hear your hurts and pain? 11.Will you just want to scream at the top of your lungs that you are the same Barbie you use to be. You just have some challenges to deal different for each person that has it. Their symptoms can be completely opposite. But we still are the same person we always were.

Susie and me at my surprise
40th birthday! And right below is 65th birthday. I’m the same person!

Vegas. Age 50. The days when I was so much fun!

Not bad for 25 years difference.

My girlfriends signed me up for The Best body on the beach contest in Ocean City against 18 yr olds in the first picture.Not happy. A bottle of wine helped! Age 40. And the two below Age 64. One in Myrtle Beach and below that I’m with my Sis and my precious niece!

Those are 24 years difference. I’m still the same fun person!

Chronic illnesses are so hard to explain to others the way you feel but I hope you understand a little bit better reading this blog.